July 24 2013

One of the OT's sat with Helen for 45 minutes this morning, just chatting with her!!

Blood sugars still stable on 84 units Lantus. Usually between 6 and 12. 

No changes in medication.  Baclofen, loperamide when necessary, ranitidine, clexane. Eurothromycine has been restarted by Dr McLusky for her acne.  They won't take off hyocine patches because her secretions may become too much for her to handle.

No MDT/CCG meetings arranged at present.  CCG is the Clinical Commissioning Group in charge of deciding whether they are going to fund care or not, what care they will fund or whether they move someone.

Report sent off to CCG but no reply yet.  No changes expected to funding.

Talked about cranioplasty with Judi.  She agrees with putting it back in but we need to be aware of rejection and infection causing damage.  

Judi says Helen is looking much better today than she has since the hot weather came.

Discussed some of Helen's goals and progress.

Trachy weaning - Liz(?) wants to speak with me at some point about where they are at with weaning.  They have occluded it briefly and Helen made a noise but not sure how much more progress has been made.

Sitting out has increased to 6 hours now.  

Social outings - has another one arranged for next week.  It may be possible for me to drive the minibus and we can take her out in the future.

We talked about future placements for Helen.  She won't move from here unless we want her to and it wouldn't be without input from Holy Cross.  She wouldn't move off the rehab package for sometime yet, until all possibilities have been explored.

Pressure areas are intact.  Heel is gradually getting better.

Need to speak to Rasheed about hydrotherapy - he is the boss.

New clothes brought and left in room.  Nothing else needed at present.

July 20 2013

Visit with Mum.  Helen in wheelchair when we arrived.  Wet.  Hair has been washed. Face clean.

Has been seen by chiropodist.  Nail varnish removed from right great toe.  Toenails have been cut.

Finger nails cut.  Eyebrows done.  Doesn't desperately need shaving.  Hair needs cutting and de-scabbing!!!

Spoke with Anna-Marie (HCA). She has requested more T-shirts as Helen's are getting worn because of getting them on and off.  Need bigger sizes.  Shorts and trousers are fine.

Blood sugars stable on 84 units Lantus. Usually between 6 and 12. 

No changes in medication.  Baclofen, loperamide when necessary, ranitidine, clexane.

Asked about coming off hyocine patches - will ask GP on Tuesday.

Forgot to ask about bone flap progress - phone up to ask GP.

Helen has got collagenous colitis - diagnosed from flexisig/biopsy in Basingstoke. Loperamide is controlling it so need need for any change in treatment.

Forgot to ask about any MDT/CCG meetings arranged. 

July 7 2013

Visit with Theresa, Rachael, Isaac, James, Big Grampy & Lorna. Helen in bed when we arrived. 

Spent time outside in sensory garden.  It was lovely and warm.  Her toes are still slightly pussy but she is due to see the chiropodist soon.

July 5 2013

Visit to meet a friend who wanted to see what Holy Cross was like.  She is really fed up with her boy not getting any rehab in where he is. 

Helen seems happy today.  She has a slight cough but no really thick secretions.  Her skin is dry and flaky.  Cleaned it, and her ears.  Cut toenails.  Left big toe is starting to look red and pussy.  Asked Daniel to keep an eye on it.  Shaved her legs.